In my alternate life, the one where George is still snug inside me waiting for his debut, I would be taking the board exam this week. I would have been studying for it for the last ten weeks so that when he was born I could just focus on getting to know him.
That seems to be how I mark the passage of time these days. Everyday that goes by is one day closer to the day he should have been born and one day farther from the few minutes I had with him while he was alive. I would be 37 weeks pregnant now...full-term.
I recently read a quote from a woman whose son, whom she refers to as Pudding, was delivered stillborn at 41 weeks. More than anything that I've read in the last eight weeks, what she said pretty much summed up exactly how I have been feeling.
"I suppose one of the profoundest changes in myself since Pudding died is that I have completely lost the ability to be comforted by statistics. This may not sound like much but for someone who's resolutely agnostic it feels as serious as a believer losing faith in God: that thing that convinced me that I was safe and protected from the calamities of the universe--gone. And will never come back, I don't think."
As someone who works in the medical field, I know statistics. I know statistics because I give them to my patients.
I know that fetal SVT is diagnosed so rarely that there aren't even many statistics in the medical literature. I know that our pediatric cardiologist, whose practice extends throughout most of Los Angeles (a city which has an annual number of births somewhere around 160,000) only sees 1-2 cases like ours a year. That makes the roughly estimated probability of this this happening to us at about 0.00125%.
I know in fetuses with hydrops associated with SVT, conversion of the heart rate back to normal using Digoxin is successful in about 15% of cases and 72-95% in cases using Flecainide. I was on both and even with an intracardiac injection of the Digoxin it did not help to keep him out of SVT for any meaningful amount of time.
According to the American Cancer Society I have a 0.12% lifetime risk of developing breast cancer. According to the National Weather Service I have a 0.016% lifetime risk of being struck by lightening. It is more likely for either of these things to happen to me over the course of my life than for George to have SVT. Ok, so I know my math isn't quite right given that I can't really calculate the lifetime risk of having a baby with SVT (that also depends on the average number of pregnancies a woman has throughout her life) but I think you get the point.
Am I paranoid now? Do I live my life in fear that something else that is also terrible and slightly less improbable than what has already happened happening again? Not really. But now those numbers that I tell my patients, as if I was giving some form of reassurance to them, don't mean anything to me anymore. I don't think they ever will again and now I know that bad things, no matter how improbable they are, can really happen. And they already have happened.